From the National Academies of Sciences, Engineering, and Medicine: The COVID-19 pandemic has had an unprecedented impact on the lives of children and their families, who have faced innumerable challenges...
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From The Arnold P. Gold Foundation: Marie Perillo, MSN, RN, CPXP is a passionate nurse in healthcare for 35 years. Most recently, she has worked in post acute care as...
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From LCA partner National Health Council: Vaccinations are a major accomplishment of the 20th century. Despite this accomplishment, the COVID-19 pandemic exposed the inadequacy of the health care system to...
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The Pandemic Legal Assistance Network (PLAN), hosted by LCA partners Pandemic Patients, is a national network of attorneys who have volunteered to provide pro bono assistance to individuals who have...
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COVID-19 and post-COVID conditions are complex enough, without the headache of insurance denial and long term disability claims. LCA partners Kantor & Kantor, LLP have created this comprehensive guide to...
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from San Diego County COVID-19 Center Recuperación Post-COVID-19 (COVID Persistente) After COVID-19 illness, some people have had returning illnesses, recurring health problems, or a range of new symptoms four or…
Resources, Groups, and Help Updated Sept. 1, 2022 Español | Other Languages Print This information is intended for a general audience. Healthcare professionals should see the post-COVID conditions for healthcare providers page for more detail…
If you are experiencing a mental health crisis, you can call 988 to immediately be connected to a mental health counselor for free and receive referrals for whatever resources you...
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From the COVID-19 Longhauler Advocacy Project: The COVID-19 Longhauler Advocacy Project has created state Facebook groups. While we have been doing a ton of advocating, we wanted to focus on…
From LCA partner National Health Council: Vaccinations are a major accomplishment of the 20th century. Despite this accomplishment, the COVID-19 pandemic exposed the inadequacy of the health care system to...
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World ME Alliance has created a comprehensive report for healthcare professionals, advocacy organizations, and community leaders on the specific accessibility needs of people with energy-limiting conditions like ME/CFS, Long COVID,...
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With a lack of validated rehabilitation interventions for people with Long COVID, occupational therapy could help patients get their lives back to normal. Occupational therapy, a branch of medicine that...
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The “Promise of Patient-Led Research Integration into Clinical Registries and Research” project moves beyond patient engagement toward a solution where patient-generated data and patient-led outcomes research become an essential component of medical…
World Health Organization has developed a clinical case definition of post COVID-19 condition by Delphi methodology that includes 12 domains, available for use in all settings. This first version was…
See daily cases, fatalities, and prevalence rates of COVID-19 in every United States county here.
From Nature Reviews Microbiology: Published January 13, 2023 Authors: Hannah E. Davis, Lisa McCorkell, Julia Moore Vogel, Eric J. Topol Patient-Led Research Collaborative, Scripps Research Translational Institute Long COVID is…
This expertise is provided by Lauri Pasch, PhD, a UCSF psychologist who has worked with and studied the psychological experiences of many COVID-19 patients, and Lekshmi Santhosh, MD, MA, a pulmonologist…
Long COVID A Comprehensive Guide for COVID-19 Longhaulers and Physician Dysautonomia Autonomic Disorders Video Library Mast Cell Activation Syndrome Overview and Diagnosis ME/CFS (Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome)US ME/CFS Clinician…
From the COVID-19 Longhaulers Advocacy Project: Our master document, A Comprehensive Guide for COVID-19 Longhaulers and Physicians, has been revamped and updated. Read it here. 2. Email this to your…
World ME Alliance has created a comprehensive report for healthcare professionals, advocacy organizations, and community leaders on the specific accessibility needs of people with energy-limiting conditions like ME/CFS, Long COVID,...
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See daily cases, fatalities, and prevalence rates of COVID-19 in every United States county here.
Longtime LCA member and Long COVID advocate Cynthia Adinig shares this about the Alliance and our core partners: Sometime during your long COVID journey, you may want to get involved in advocacy….
The following guide is meant to be used as a reference tool for journalists and advocates shaping news coverage of long-term symptoms of Covid-19. See below for the full linked…
COVID-19 has forever changed the world. During these perilous times, it is imperative that those tasked with providing the populace with information do so in a manner that does not…
From the The Massachusetts ME/CFS & FM Association: Since 1985 we have offered support to patients and their caregivers for ME, CFS and FM. We now offer support to those…
By Oved Amitay, Dr. Anthony L. Komaroff “Long-haulers” is no longer just a job description for truckers. This term now refers to the growing number of people who contracted Covid-19…
From The Arnold P. Gold Foundation: Marie Perillo, MSN, RN, CPXP is a passionate nurse in healthcare for 35 years. Most recently, she has worked in post acute care as...
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From My Body Odyssey: My Body Odyssey is a podcast about the challenges and rewards of exercise amidst chronic health issues. This episode highlights the paradoxically negative, often debilitating, impact...
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LCA partners Patient-Led Research Collaborative join the ECHO Long COVID & Fatiguing Illness Recovery Program to present the latest research findings on treatment options, recovery timelines, comorbidities, and best practices. ...
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Solve ME president Oved Amitay, co-founder of the LCA, recaps key research publications from summer 2023. Topics covered include connections between Long COVID, ME/CFS, and Epstein-Barr Virus; pathophysiological factors and...
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From LCA partner Bateman Horne Center: Patients who have post-exertional malaise (PEM/PESE) generally benefit more from pacing and energy conservation than exercise-focused treatments. Pacing for PEM/PESE involves managing exertion to...
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Long COVID or any chronic illness brings new uncertainties, unexpected transitions, and necessary coping mechanisms. Learn about career transitions, unemployment, job accommodations, invisible illness interviewing tips, academic accommodations, and more….
Dr. Klimas is an expert on multi-symptom disorders, myalgic encephalomyelitis (ME), Gulf War Illness, fibromyalgia, and other neuro-immune disorders. In the seminar, Dr. Klimas touches on the medical sexism that…
In this first webinar in a series presented by the Long COVID Alliance, learn about the latest research exploring the relationship between POTS and other forms of dysautonomia in post-acute sequelae…
From the Pulmonary Wellness Foundation: In September 2020, Pulmonary Wellness hosted a conversation with Dr. Svetlana Blitshteyn, Director and Founder of Dysautonomia Clinic. The Pulmonary Wellness Foundation has Launched a…
From PhysiosforME: The PhysiosforME team are joined by Professor Todd Davenport and Suzan Jackson to discuss the theory and practice of HR monitoring. For more information please go to: www.physiosforme.com.
With limited data and funding, advocates are pleading with lawmakers to support research and surveillance of long COVID in the new Congress. From Erin Durkin at the National Journal and…
We’re grateful for Sen. Kaine’s continued support of the Long COVID community. Sen. Kaine, a Long COVID patient himself, has previously advocated for and represented LCA and partners’ initiatives on…
Watch the full panel here The long-term debilitating effects of COVID-19 on people infected with the SARS-CoV-2 virus are a serious concern for clinicians, researchers and policymakers. Four months after…
While there are many things we do not yet know about Long COVID, BHC’s years of clincial care and research experience can help inform patients and healthcare professionals as they…
UPDATE: A huge thank you to the 200+ organizations and individuals who have already signed our letter! To continue to support, please read and repost. In response to this week's...
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From Solve ME: Solve M.E. recently opened the 2021 Ramsay Grant Program Request for Applications (RFA), which offers competitive funding for studies into myalgic encephalomyelitis (also known as chronic fatigue…
by Karyn Bishof I am a COVID-19 Long Hauler and I have been sick for a year. March 15, 2020 was the day I first became symptomatic, with a sore…
One out of three Covid patients, or 8.4 million Americans, have persistent symptoms months after they first got sick, a recent study shows. In post-Covid clinics across the country, doctors…
Members of the Long COVID Alliance have drafted key recommendations and guidance for the National Institutes of Health, including a list of scientific initiatives from the research community to highlight…
A range of organizations are forming a new advocacy group, the Long COVID Alliance, to push for greater funding and research into patients who suffer Covid symptoms long after they’re free…