What is Long COVID?

Long COVID is also known as Post-acute COVID-19 syndrome (PACS), Post-acute Sequelae of COVD-19 (PASC), Long Haul COVID, or Long-term COVID-19.

These terms describe a collection of lingering symptoms devastating the lives of millions of COVID-19 survivors. These symptoms persist in an estimated 10–20% of COVID-19 patients, regardless of infection severity, even after the patient no longer tests positive for the virus or antibodies. While recovery times for COVID-19 vary from person to person, Long COVID generally refers to cases where symptoms continue to persist for 90 days or more.

Preliminary reports and data about Long COVID symptoms and patient experiences contain many similarities to other chronic illnesses known to be associated with viral triggers, such as Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), postural orthostatic tachycardia syndrome (POTS), dysautonomia, and mast cell activation syndrome (MCAS), and more. Among patients with provider visits, 68% received a new diagnosis and 38% visited a new specialist who did not treat the patient in the year before their COVID-19 infection.

The Long COVID Alliance is a network of patient-advocates, scientists, disease experts, and drug developers who have joined together to leverage their collective knowledge and resources to educate policy makers and accelerate research to transform our understanding of post-viral illness.

Need Support?

If you are looking for resources or support, click here to send a message to our team.

Please understand that we provide general referrals and resources.

We are not able to respond to medical questions or provide legal guidance.