This resource is a supplement to the Medical Summary Report (MSR) Interview Guide and Template and a tool for case development. It provides guidance for working with individuals who are...
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The COVID-19 pandemic catalyzed unparalleled speed and cross-sector collaboration in the innovation of tools and technologies to address an emerging infectious disease outbreak. Continued innovation and collaboration in rapid development...
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According to the 2015 National Academy of Medicine report, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) "is a serious, chronic, complex, and systemic disease that frequently and dramatically limits the activities of...
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From LCA partner National Health Council: Vaccinations are a major accomplishment of the 20th century. Despite this accomplishment, the COVID-19 pandemic exposed the inadequacy of the health care system to...
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World ME Alliance has created a comprehensive report for healthcare professionals, advocacy organizations, and community leaders on the specific accessibility needs of people with energy-limiting conditions like ME/CFS, Long COVID,...
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With a lack of validated rehabilitation interventions for people with Long COVID, occupational therapy could help patients get their lives back to normal. Occupational therapy, a branch of medicine that...
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The “Promise of Patient-Led Research Integration into Clinical Registries and Research” project moves beyond patient engagement toward a solution where patient-generated data and patient-led outcomes research become an essential component of medical…
World Health Organization has developed a clinical case definition of post COVID-19 condition by Delphi methodology that includes 12 domains, available for use in all settings. This first version was…
See daily cases, fatalities, and prevalence rates of COVID-19 in every United States county here.
From Nature Reviews Microbiology: Published January 13, 2023 Authors: Hannah E. Davis, Lisa McCorkell, Julia Moore Vogel, Eric J. Topol Patient-Led Research Collaborative, Scripps Research Translational Institute Long COVID is…