The “Promise of Patient-Led Research Integration into Clinical Registries and Research” project moves beyond patient engagement toward a solution where patient-generated data and patient-led outcomes research become an essential component of medical…
World Health Organization has developed a clinical case definition of post COVID-19 condition by Delphi methodology that includes 12 domains, available for use in all settings. This first version was…
See daily cases, fatalities, and prevalence rates of COVID-19 in every United States county here.
From Nature Reviews Microbiology: Published January 13, 2023 Authors: Hannah E. Davis, Lisa McCorkell, Julia Moore Vogel, Eric J. Topol Patient-Led Research Collaborative, Scripps Research Translational Institute Long COVID is…
This expertise is provided by Lauri Pasch, PhD, a UCSF psychologist who has worked with and studied the psychological experiences of many COVID-19 patients, and Lekshmi Santhosh, MD, MA, a pulmonologist…
Long COVID A Comprehensive Guide for COVID-19 Longhaulers and Physician Dysautonomia Autonomic Disorders Video Library Mast Cell Activation Syndrome Overview and Diagnosis ME/CFS (Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome)US ME/CFS Clinician…
From the COVID-19 Longhaulers Advocacy Project: Our master document, A Comprehensive Guide for COVID-19 Longhaulers and Physicians, has been revamped and updated. Read it here. 2. Email this to your…
From Body Politic: In light of recent public conversations about the role of exercise, neural training, and cognitive behavioral therapy in Long COVID recoveries, we at Body Politic want to…
