“We do know for absolutely certain that there is a post-COVID syndrome. Anywhere from 25 to 35 percent, or more, have lingering symptoms well beyond what you would expect from any post viral syndrome like influenza and others.”
– Dr. Anthony Fauci, Director of the National Institute of Allergy and Infectious Disease
Our Success
2023
2022
Championed NIH reallocation for FY2023 Long COVID appropriations research funding
Hired dedicated LCA Program Manager to expand and improve initiatives
Continued advocacy efforts with coverage in New York Times, LA Times, CNBC, The Atlantic, CNN, Fortune and more
Expanded resource library to help thousands of patients and caregivers
Reached 1000 member milestone
2021
Helped secure $1.25 Billion for Long COVID research, diagnostics, and clinical trials at the NIH
Gained national exposure with features in TIME Magazine, LA Times, Washington Post, and more
Championed the COVID-19 Long Haulers Act (H.R. 2754) for formal introduction before Congress
Submitted recommendations to Congress for Long COVID research investment in the 2020 COVID-19 Economic Relief Bill
LCA founded with partners Solve ME, You+ME Registry, COVID-19 Longhaulers Advocacy Project, and Global Pandemic Coalition