The “Promise of Patient-Led Research Integration into Clinical Registries and Research” project moves beyond patient engagement toward a solution where patient-generated data and patient-led outcomes research become an essential component of medical research, leading to more patient-centric comparative effectiveness research (CER). Patients and patient organizations, funders, research institutions and other traditional biomedical research teams can collaboratively build the infrastructure and dynamics needed for patient-led CER. Use these scorecards by Patient-Led Research Collaborative and Council of Medical Speciality Societies to evaluate patient-informed LCAC research.
