The “Promise of Patient-Led Research Integration into Clinical Registries and Research” project moves beyond patient engagement toward a solution where patient-generated data and patient-led outcomes research become an essential component of medical research, leading to more patient-centric comparative effectiveness research (CER). Patients and patient organizations, funders, research institutions and other traditional biomedical research teams can collaboratively build the infrastructure and dynamics needed for patient-led CER. Use these scorecards by Patient-Led Research Collaborative and Council of Medical Speciality Societies to evaluate patient-informed LCAC research.
How to include patients in Long COVID research
By Long Covid AllianceMay 11, 2023Provider Education, Research
Long COVID Clinical Case Definition
World Health Organization has developed a clinical case definition of post COVID-19 condition by Delphi…
Long Covid AllianceMay 11, 2023
Advocacy ResourcesProvider EducationResearch
COVID Interactive Case Mapper
See daily cases, fatalities, and prevalence rates of COVID-19 in every United States county here.
Research: Long COVID Major Findings, Mechanisms, Recommendations
From Nature Reviews Microbiology: Published January 13, 2023 Authors: Hannah E. Davis, Lisa McCorkell, Julia…