The “Promise of Patient-Led Research Integration into Clinical Registries and Research” project moves beyond patient engagement toward a solution where patient-generated data and patient-led outcomes research become an essential component of medical…
See daily cases, fatalities, and prevalence rates of COVID-19 in every United States county here.
From Nature Reviews Microbiology: Published January 13, 2023 Authors: Hannah E. Davis, Lisa McCorkell, Julia Moore Vogel, Eric J. Topol Patient-Led Research Collaborative, Scripps Research Translational Institute Long COVID is…
November 2022: The new Health+ Long COVID Report commissioned by HHS and produced by an independent third-party agency compliments the existing landscape of Long COVID scientific literature and anecdotes with the narratives…
This expertise is provided by Lauri Pasch, PhD, a UCSF psychologist who has worked with and studied the psychological experiences of many COVID-19 patients, and Lekshmi Santhosh, MD, MA, a pulmonologist…
From CircumSTANCE: October 6, 2021 “Multisystem inflammatory syndrome in children (MIS-C) is a serious condition that appears to be linked to coronavirus disease 2019 (COVID-19). Most children who become infected…
From The Lancet: Published July 15, 2021 Authors: Hannah E. Davis, Gina S. Assaf, Lisa McCorkell, Hannah Wei, Ryan J. Low, Yochai Re’em, Signe Redfield, Jared P. Austin, and Athena…
From The You + ME Registry and Biobank: Emerging evidence has made it clear that, for some, COVID-19 recovery isn’t like flipping an off switch. Thousands of people are still…
The You + ME Registry and Biobank is an online clinical study of individuals committed to identifying a cure for ME/CFS, Long COVID, and other post-viral illnesses. The community is…
From Body Politic: In light of recent public conversations about the role of exercise, neural training, and cognitive behavioral therapy in Long COVID recoveries, we at Body Politic want to…
