From CircumSTANCE: October 6, 2021 “Multisystem inflammatory syndrome in children (MIS-C) is a serious condition that appears to be linked to coronavirus disease 2019 (COVID-19). Most children who become infected…
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From The American Academy of Pediatrics: August 4, 2021 The American Academy of Pediatrics has published guidance on caring for children after COVID-19 infection: https://services.aap.org/en/news-room/news-releases/aap/2021/american-academy-of-pediatrics-offers-guidance-in-caring-for-children-after-covid-19-infection/. From the guidance: At the…
From The Lancet: Published July 15, 2021 Characterizing long COVID in an international cohort: 7 months of symptoms and their impact Authors: Hannah E. Davis, Gina S. Assaf, Lisa McCorkell,…
Center for Chronic Illness The Center for Chronic Illness (CCI) promotes well-being and decreases isolation for those impacted by chronic illness through support and education. Their online support groups are…
From The You + ME Registry and Biobank: Emerging evidence has made it clear that, for some, COVID-19 recovery isn’t like flipping an off switch. Thousands of people are still…
From Solve ME: Solve M.E. recently opened the 2021 Ramsay Grant Program Request for Applications (RFA), which offers competitive funding for studies into myalgic encephalomyelitis (also known as chronic fatigue…
Long COVID A Comprehensive Guide for COVID-19 Longhaulers and Physician Dysautonomia Autonomic Disorders Video Library Mast Cell Activation Syndrome Overview and Diagnosis ME/CFS (Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome) US ME/CFS…
In this first webinar in a series presented by the Long COVID Alliance, learn about the latest research exploring the relationship between POTS and other forms of dysautonomia in post-acute sequelae…
From the COVID-19 Longhauler Advocacy Project: The COVID-19 Longhauler Advocacy Project has created state Facebook groups. While we have been doing a ton of advocating, we wanted to focus on…
This is a running list of recruiting studies, clinical trials, and research opportunities. If you have an opportunity to add to this list, please contact us. Federally-Funded Clinical Studies ClinicalTrials.gov…