The “Promise of Patient-Led Research Integration into Clinical Registries and Research” project moves beyond patient engagement toward a solution where patient-generated data and patient-led outcomes research become an essential component of medical…
From Nature Reviews Microbiology: Published January 13, 2023 Authors: Hannah E. Davis, Lisa McCorkell, Julia Moore Vogel, Eric J. Topol Patient-Led Research Collaborative, Scripps Research Translational Institute Long COVID is…
With limited data and funding, advocates are pleading with lawmakers to support research and surveillance of long COVID in the new Congress. From Erin Durkin at the National Journal and…
We’re grateful for Sen. Kaine’s continued support of the Long COVID community. Sen. Kaine, a Long COVID patient himself, has previously advocated for and represented LCA and partners’ initiatives on…
Watch the full panel here The long-term debilitating effects of COVID-19 on people infected with the SARS-CoV-2 virus are a serious concern for clinicians, researchers and policymakers. Four months after…