From the The Massachusetts ME/CFS & FM Association: Since 1985 we have offered support to patients and their caregivers for ME, CFS and FM. We now offer support to those…
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by Karyn Bishof I am a COVID-19 Long Hauler and I have been sick for a year. March 15, 2020 was the day I first became symptomatic, with a sore…
One out of three Covid patients, or 8.4 million Americans, have persistent symptoms months after they first got sick, a recent study shows. In post-Covid clinics across the country, doctors…
The You + ME Registry and Biobank is an online clinical study of individuals committed to identifying a cure for ME/CFS, Long COVID, and other post-viral illnesses. The community is…
From the COVID-19 Longhaulers Advocacy Project: Our master document, A Comprehensive Guide for COVID-19 Longhaulers and Physicians, has been revamped and updated. Read it here. 2. Email this to your…
From Body Politic: In light of recent public conversations about the role of exercise, neural training, and cognitive behavioral therapy in Long COVID recoveries, we at Body Politic want to…
In this podcast, Todd shares with us his research in ME/CFS and post-exertion malaise (PEM). He discusses the characterisation of ME/CFS, the challenges with the word “fatigue” in describing a…
Members of the Long COVID Alliance have drafted key recommendations and guidance for the National Institutes of Health, including a list of scientific initiatives from the research community to highlight…
A range of organizations are forming a new advocacy group, the Long COVID Alliance, to push for greater funding and research into patients who suffer Covid symptoms long after they’re free…
Today, leaders of 50 organizations and patient groups announced the formation of the Long COVID Alliance. The Alliance includes a network of patient-advocates, scientists, public health and disease experts, and…