The “Promise of Patient-Led Research Integration into Clinical Registries and Research” project moves beyond patient engagement toward a solution where patient-generated data and patient-led outcomes research become an essential component of medical…
Search for financial aid programs, food assistance, housing accommodations, legal services, and more in your area, available to all patients and families here.
Long COVID or any chronic illness brings new uncertainties, unexpected transitions, and necessary coping mechanisms. Learn about career transitions, unemployment, job accommodations, invisible illness interviewing tips, academic accommodations, and more….
World Health Organization has developed a clinical case definition of post COVID-19 condition by Delphi methodology that includes 12 domains, available for use in all settings. This first version was…
See daily cases, fatalities, and prevalence rates of COVID-19 in every United States county here.
From Nature Reviews Microbiology: Published January 13, 2023 Authors: Hannah E. Davis, Lisa McCorkell, Julia Moore Vogel, Eric J. Topol Patient-Led Research Collaborative, Scripps Research Translational Institute Long COVID is…
Find state-specific clinics or care centers with Long COVID specialization, sourced for and by Long COVID & Associated Conditions patients, caregivers, and families. LCA thanks COVID-19 Longhauler Advocacy Project for…