From The Lancet: Published July 15, 2021 Authors: Hannah E. Davis, Gina S. Assaf, Lisa McCorkell, Hannah Wei, Ryan J. Low, Yochai Re’em, Signe Redfield, Jared P. Austin, and Athena…
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From The You + ME Registry and Biobank: Emerging evidence has made it clear that, for some, COVID-19 recovery isn’t like flipping an off switch. Thousands of people are still…
The You + ME Registry and Biobank is an online clinical study of individuals committed to identifying a cure for ME/CFS, Long COVID, and other post-viral illnesses. The community is…
From Body Politic: In light of recent public conversations about the role of exercise, neural training, and cognitive behavioral therapy in Long COVID recoveries, we at Body Politic want to…
Members of the Long COVID Alliance have drafted key recommendations and guidance for the National Institutes of Health, including a list of scientific initiatives from the research community to highlight…
This article by Robert Glatter, MD was originally published by Forbes on February 20, 2021. As people with long Covid come to grips with ongoing symptoms such as fatigue, chest pain, difficulty…
For some people with COVID-19, even those who are only mildly affected at first, the ensuing weeks and months of “recovery” bring a surprise and a betrayal: they do not return to full health. Although nucleic acid tests no longer detect the virus, people still suffer from ongoing symptoms. They call themselves “long haulers,” and the condition is being called “long COVID.”
Americans who are unable to work due to long-term Covid-19 symptoms could help overhaul the country’s disability system. Read this US News & World Report article, featuring the Long COVID…
Long COVID A Comprehensive Guide for COVID-19 Longhaulers and Physician Dysautonomia Autonomic Disorders Video Library Mast Cell Activation Syndrome Overview and Diagnosis ME/CFS (Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome)US ME/CFS Clinician…
From the Kantor & Kantor: View the Guidebook here Please use this as a guide to the disability insurance claims and disability process. We know that COVID-19 is complex enough;…
From the COVID-19 Longhaulers Advocacy Project: Our master document, A Comprehensive Guide for COVID-19 Longhaulers and Physicians, has been revamped and updated. Read it here. 2. Email this to your…
From PhysiosforME: The PhysiosforME team are joined by Professor Todd Davenport and Suzan Jackson to discuss the theory and practice of HR monitoring. For more information please go to: www.physiosforme.com.
From PhysiosforME: PhysiosforME and Dr. Charles Shepherd discuss PVF, PVFS and ME. Personal experiences of supporting people with PVFS and ME, how to distinguish between PVF, PVFS and ME, exercise…
From Dysautonomia International: Dysautonomia researchers from Stanford University and Stony Brook University discuss dysautonomia symptoms that are occurring in some COVID-19 patients, and what COVID patients need to know about…
From Body Politic: On October 4th, 2020, Body Politic admin Alison Sbrana spoke with Clinical Rehabilitation Counselor Dr. Julie Hill about her expertise, what advice she has for Covid patients,…
In this podcast, Todd shares with us his research in ME/CFS and post-exertion malaise (PEM). He discusses the characterisation of ME/CFS, the challenges with the word “fatigue” in describing a…
In this webinar hosted by the Massachusetts ME/CFS and FM Association Research Support Club, Roshan Kumar, PhD (Biochemistry) provides information about the COVID vaccines and answers questions from listeners.
In this video, we will be discussing the research, the clinical lab protocol for patients, and the Chronic COVID treatment center. A few moderators from the long haulers advocacy groups…
In this webinar, Solve M.E. President & CEO Oved Amitay and Advocacy & Community Relations Director Emily Taylor talk to Howard and Bishof explore how COVID long haulers and the ME/CFS community can join forces for progress in the study, understanding and management of both COVID-19 and ME/CFS.
Today, leaders of 50 organizations and patient groups announced the formation of the Long COVID Alliance. The Alliance includes a network of patient-advocates, scientists, public health and disease experts, and…
By Oved Amitay, Dr. Anthony L. Komaroff “Long-haulers” is no longer just a job description for truckers. This term now refers to the growing number of people who contracted Covid-19…