“We know that Long COVID is real. Our driving force is to ensure that everyone knows that Long COVID is real…[Patients], and their families and providers have implored we do more, to start translating research into therapeutics so people can get the help they need as soon as possible, and to provide a pathway to recovery.”
– Admiral Rachel L. Levine, M.D., United States Assistant Secretary of Health, HHS
Our Success
2023
Shared best practices with National Academies of Sciences, Engineering, and Mathematics’ Symposium on Long COVID
Endorsed the reintroduction of the CARE for Long COVID Act and TREAT Long COVID Act
Shared best practices with U.S. Food and Drug Administration Patient-Focused Drug Development program
Shared best practices with Centers for Disease Control Foundation Infection-Associated Chronic Conditions Understanding and Engagement program
Reached 2000 member milestone
2022
Championed NIH reallocation for FY2023 Long COVID appropriations research funding
Hired dedicated LCA Program Manager to expand and improve initiatives
Continued advocacy efforts with coverage in New York Times, LA Times, CNBC, The Atlantic, CNN, Fortune and more
Expanded resource library to help thousands of patients and caregivers
Reached 1000 member milestone
2021
Helped secure $1.25 Billion for Long COVID research, diagnostics, and clinical trials at the NIH
Gained national exposure with features in TIME Magazine, LA Times, Washington Post, and more
Championed the COVID-19 Long Haulers Act (H.R. 2754) for formal introduction before Congress
Submitted recommendations to Congress for Long COVID research investment in the 2020 COVID-19 Economic Relief Bill
LCA founded with partners Solve ME, You+ME Registry, COVID-19 Longhaulers Advocacy Project, and Global Pandemic Coalition