Long COVID Impacts 23MIL Americans…and still counting

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DID YOU KNOW? 10-20%of people with COVID-19 will experience lingering symptoms and may become permanently DISABLED

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WE'VE SECURED OVER $1 BILLION to study Long COVID...so far

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1500+ Partners MAKING CHANGE to find big answers to big problems

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the Long COVID
Alliance

is a network of patient-advocates, scientists, disease experts, and drug developers who have joined together to leverage their collective knowledge and resources to educate policy makers and accelerate research to transform our understanding of post-viral illness.

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Research Library

See the latest findings from across the Long COVID and associated conditions space

Patient Resources

Find comprehensive support, care, and services for patients, caregivers, and their families

Action Center

Learn how to get involved with the Long COVID and associated conditions advocacy community

OUR PARTNERS

The LCA was co-founded in 2021 by Solve ME, the Global Pandemic Coalition, and the COVID-19 Longhaulers Advocacy Project. We are a coalition of over 1,500 Long COVID & Associated Conditions organizations and individuals from around the world across the advocacy, education, federal policy, and scientific research spaces.

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Watch now! Visit the link in bio to see the full w

Watch now! Visit the link in bio to see the full webinar from LCA, @markedbycovid , and @solve_cfs with Senate staffers for Sen. Tim Kaine and Sen. Kirsten Gillibrand.#longcovid #longcovidrecovery #Covid19 #Advocacy #LongHaulers #LongHaulCovid #PatientAdvocacy #ChronicIllnessAwareness #Disability

Imagine never waking up feeling rested... About a

Imagine never waking up feeling rested...About a third of Long COVID cases include “standalone” fatigue, and nearly half are estimated to meet the criteria for myalgic encephalomyelitis/chronic fatigue syndrome. People dealing with the energy-limiting symptoms of Long COVID, like LCA member Jennifer, typically also deal with post-exertional malaise (PEM), unrefreshing sleep, new or worsening sleep disorders, and resulting cognitive impairment. Become a member of the Alliance community and share your story with us.#longcovid #longcovidrecovery #Covid19 #Advocacy #LongHaulers #LongHaulCovid #PatientAdvocacy #ChronicIllnessAwareness #Disability

Having an invisible illness means having to consta

Having an invisible illness means having to constantly explain that you have an invisible illness 🙃Whether you're new to a diagnosis or have lived alongside your illness for a while, whether you have the support and resources you need or you're struggling to move forward, whether today feels doable or today is a lot worse than yesterday: We're here for you. Remember that you never have to answer questions you're not comfortable answering, you can always leave situations that aren't caring, and you can set or move boundaries whenever, wherever.Link in bio to join our community and share your story.#longcovid #longcovidrecovery #Covid19 #Advocacy #LongHaulers #LongHaulCovid #PatientAdvocacy #ChronicIllnessAwareness #Disability

An incredible years-long effort by the Long COVID

An incredible years-long effort by the Long COVID team at @mountsinainyc @mountsinairehabusq @yaleschoolofmed, who have taken the first steps to identify LC biomarkers that can be used in future diagnostics! From @akiko__iwasaki, “Most importantly, we are grateful for all the participants who contributed their time, effort, blood, and medical information to better understand long COVID disease pathogenesis.” #longcovid #longcovidrecovery #Covid19 #Advocacy #LongHaulers #LongHaulCovid #PatientAdvocacy #ChronicIllnessAwareness #Disability

Are you registered yet? Join @longcovidalliance @m

Are you registered yet? Join @longcovidalliance @markedbycovid and @solve_cfs TOMORROW for an interactive webinar on federal policy initiatives in 2024 for people with Long COVID and associated conditions and impacted by COVID. Learn how to maximize your impact to amplify the voices of those most harmed by the pandemic and bring lasting change to the millions affected. Visit the link in bio to register now!#longcovid #longcovidrecovery #Covid19 #Advocacy #LongHaulers #LongHaulCovid #PatientAdvocacy #ChronicIllnessAwareness #Disability