You + ME: A Registry for the ME/CFS and Long COVID Communities

By December 16, 2020March 17th, 2021Events & Webinars

By Oved Amitay, Allison Ramiller

After months of collaborative development with community members and researchers, we opened the You + ME Registry for enrollment in June 2020. You + ME is driven by a big vision — building a community of thousands contributing health information to create the largest dataset ever for ME/CFS research. Many research projects have come to a stop due to COVID19 stay-at-home orders and lab closures, but You + ME is completely online, turning each individual and their data into a research project incubator from the comfort and safety of home.

To better understand the reasons why COVID-19 long haulers continue to suffer with persistent symptoms, we are using the You + ME Registry and Biobank to collect data and biological samples from individuals with and without persistent symptoms. We will also compare these data to information from people with myalgic encephalomyelitis (also known as chronic fatigue syndrome or ME/CFS), to characterize similarities and differences between the two groups.

In this webinar, Solve M.E. Director of Research Programs Allison Ramiller and CEO Oved Amitay take a closer look at what the registry has to offer, and how to make the most of your You + ME experience!