From The You + ME Registry and Biobank: Emerging evidence has made it clear that, for some, COVID-19 recovery isn’t like flipping an off switch. Thousands of people are still…
From Solve ME: Solve M.E. recently opened the 2021 Ramsay Grant Program Request for Applications (RFA), which offers competitive funding for studies into myalgic encephalomyelitis (also known as chronic fatigue…
To better understand the reasons why COVID-19 long haulers continue to suffer with persistent symptoms, we are using the You + ME Registry and Biobank to collect data and biological samples from individuals with and without persistent symptoms. We will also compare these data to information from people with myalgic encephalomyelitis (also known as chronic fatigue syndrome or ME/CFS), to characterize similarities and differences between the two groups.
In this webinar, Solve M.E. President & CEO Oved Amitay and Advocacy & Community Relations Director Emily Taylor talk to Howard and Bishof explore how COVID long haulers and the ME/CFS community can join forces for progress in the study, understanding and management of both COVID-19 and ME/CFS.
A study of Covid-19 long haulers may well also shed light on ME/CFS and post-infectious fatigue syndromes following infections other than COVID-19. One major obstacle to understanding the long-term effects of Covid-19 is the lack of available data. The scientific community – public and private – needs to gather as much data as possible while we are still in the early phases of this Covid-19 era.