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Solve ME/CFS Initiative Archives - Long-COVID Alliance

You + ME: A Registry for the ME/CFS and Long COVID Communities

By Events & Webinars

To better understand the reasons why COVID-19 long haulers continue to suffer with persistent symptoms, we are using the You + ME Registry and Biobank to collect data and biological samples from individuals with and without persistent symptoms. We will also compare these data to information from people with myalgic encephalomyelitis (also known as chronic fatigue syndrome or ME/CFS), to characterize similarities and differences between the two groups.

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We Know Too Little About Covid-19 “long-haulers.” We Need a Comprehensive Study

By In the News

A study of Covid-19 long haulers may well also shed light on ME/CFS and post-infectious fatigue syndromes following infections other than COVID-19. One major obstacle to understanding the long-term effects of Covid-19 is the lack of available data. The scientific community – public and private – needs to gather as much data as possible while we are still in the early phases of this Covid-19 era.

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