Long COVID
Alliance
Long COVID has impacted 23 million Americans…and counting.
In 2020, 21 science, post-viral disease and patient advocacy organizations came together to call for urgent government investment for Long COVID research. This successful effort laid the foundations of the Long COVID Alliance. Today, this network of patient-advocates, scientists, disease experts, and drug developers collaborate and share their collective knowledge to transform our understanding of post-viral illness.
Body Politic The Body Politic Slack support group provides members with emotional support, resources, community, and opportunities for advocacy. If you have tested positive, are experiencing symptoms, or are recovering…
This is a running list of recruiting studies, clinical trials, and research opportunities. If you have an opportunity to add to this list, please contact us. NIH RECOVER Studies RECOVER…
From CircumSTANCE: October 6, 2021 “Multisystem inflammatory syndrome in children (MIS-C) is a serious condition that appears to be linked to coronavirus disease 2019 (COVID-19). Most children who become infected…
From The American Academy of Pediatrics: August 4, 2021 The American Academy of Pediatrics has published guidance on caring for children after COVID-19 infection: https://services.aap.org/en/news-room/news-releases/aap/2021/american-academy-of-pediatrics-offers-guidance-in-caring-for-children-after-covid-19-infection/. From the guidance: At the…
From The Lancet: Published July 15, 2021 Characterizing long COVID in an international cohort: 7 months of symptoms and their impact Authors: Hannah E. Davis, Gina S. Assaf, Lisa McCorkell,…
The Long COVID Alliance was recently mentioned in an article by journalist Chelsea Cirruzzo for U.S. News & World Report. Cirruzzo writes, “Guidance on how health care providers can identify…
From The You + ME Registry and Biobank: Emerging evidence has made it clear that, for some, COVID-19 recovery isn’t like flipping an off switch. Thousands of people are still…
Dr. Klimas is an expert on multi-symptom disorders, myalgic encephalomyelitis (ME), Gulf War Illness, fibromyalgia, and other neuro-immune disorders. In the seminar, Dr. Klimas touches on the medical sexism that…
Americans who are unable to work due to long-term Covid-19 symptoms could help overhaul the country’s disability system. Read this US News & World Report article, featuring the Long COVID…
From Solve ME: Solve M.E. recently opened the 2021 Ramsay Grant Program Request for Applications (RFA), which offers competitive funding for studies into myalgic encephalomyelitis (also known as chronic fatigue…
Long COVID A Comprehensive Guide for COVID-19 Longhaulers and Physician Dysautonomia Autonomic Disorders Video Library Mast Cell Activation Syndrome Overview and Diagnosis ME/CFS (Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome)…
If you are a person looking for resources or patient support, please click here to send a message to our team.
Please understand that we provide general referrals and resources and are not able to respond to medical questions about specific doctors, treatments, or provide legal guidance.
